My Symptoms Update a Year and a Half into Mold Treatment

I thought it might be nice to see where I am at in regards to my Symptoms list.

When I began this journey and I was terribly unwell I had appx. 61 symptoms (that I was aware of, there were a couple more but whatever I didn't list them so they aren't included.)

Overall, I feel like I am about 75% better-78% better but it does still constantly change, as I expect it to because healing is NOT linear.

Feb 2020 (61 Symptoms):

Headaches in sinus area

Migraines in rear/base of head

Brain fog

Forgetfulness

Trouble recalling words

Difficulty concentrating

Losing my train of thought mid sentence

Feeling as though my personality has changed (generally very flat, or swinging to extreme anxiety and or having a panic attack)

Black eye floaters in left eye

Blurry vision

Sensitivity to lights

Sensitivity to screens

Cranial swelling (forehead, eye lids, inner ears, tongue)

Tongue Thrush 2+ months

Throat swelling

Throat sore/horse

Throat pain

Tingling and numbness in arms, arms, and legs

Difficulty taking a full breath

Lung/chest pain

Heart burn

Upset stomach/nausea

Stomach pain

Gastritis

Bloating

Belching

Feeling full after only a few bites

Feeling ravenous

Feeling thirsty often

Flank pain

Pain in mid back on either side of my spine

Abdominal cramping

Abdominal bloating

Sharp sudden abdominal pain

Bowel movements are always Type 6 or 7 (mostly or completely loose)

Bowel movements with mucus

Bowel movements many times a day

Very foul smelling bowel movements

Alternating Diarrhea with Constipation

Vaginal discharge white tissue or bacteria

Feeling tingling in arms and legs

Feeling numb in arms or legs

Arm, Chest, Neck and Facial rashes/flushing

Hair Loss

Hair growth on body

Pain in Lymph nodes (Neck areas and armpits worst)

Lack of appetite

Over reactive to smells (headache, nausea)

Under reactive sex drive (essentially drive is gone)

Hyper reactive to loud/sudden noise

Chronic Fatigue (have been sleeping between 9-11 hours a night since Feb and it isn't enough, I never wake with energy)

Sweating profusely (overnight)

Blood sugar instability

Tachycardia spontaneous during day

Tachycardia occasionally when standing from squatting or sitting

Feeling malnourished

Extremely dry skin

Sensitive to temperature change

Histamine Intolerance

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February 2022 27 Symptoms

Brain fog Post meals occasionally

Feeling as though my personality has changed (generally very flat, or swinging to extreme anxiety and or having a panic attack) Slowly coming back!

Black eye floaters in left eye Much less often

Blurry vision Only when eyes very dry

Sensitivity to sunlight Less

Sensitivity to light from screens Much rarer

Tongue Thrush 2+ months More often now, Just can't kick this stuff, it re-occurs which tells me a lot

Throat swelling

Tingling and numbness in arms, arms, and legs Rarer

Difficulty taking a full breath Rare air hunger still

Upset stomach/nausea

Feeling ravenous Less Often

Bowel movements are always Type 6 or 7 (mostly or completely loose) BM amounts are consistent in amt. now but still show intestinal inflammation- formation tells that

Very foul smelling bowel movements Still occurs with die off

Vaginal discharge white tissue or bacteria Much Less

Feeling tingling in tongue More often now

Arm, Chest, Neck and Facial rashes/flushing Rare now

Hair (on head) loss Less

Pain in Lymph nodes (Neck, chest, and armpits worst)

Over reactive to smells (headache, nausea)

Under reactive sex drive (essentially drive is gone)

Chronic Fatigue (have been sleeping between 9-11 hours a night since Feb and it isn't enough) I wake with energy now but do need a break in the afternoon daily, and in the evening to just sit and rest- but that is a normal thing that we just don't do in our society unfortunately. We need to normalize resting.

Sweating profusely (overnight)

Blood sugar instability

Histamine intolerance

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Going from 61 symptoms to 27 is a huge gain! I know it has been a slower road to get here but I do not care, I will do anything to keep going.

The fact that I feel so much more capable now is amazing. I can work at home creating children's books and materials while I continue to recover and help support my family through their recoveries.

I can take care of my kids again.

I can go out and see friends occasionally and have enough energy to participate.

I can hike with my husband and enjoy conversations with him, and eat foods that I used to dream about eating again.

I ran two races this summer and fall 5 and 6 miles long, and was okay (just some post-exertional fatigue and light adrenal issues later).

I still have a lot of work to do and I am going to keep pushing toward it.

I'm working on my comeback every day.

The biggest THANK YOU in the world to my absolutely mind-blowing partner who never left my side through all of this, Joe LiButti. It is extremely rare to have such a supportive partner when you have chronic illness, especially when the illness is Mold and the medical world is constantly doubting and gaslighting you. I never would have made it this far without you, Joey.

So much gratitude for where I am at now. <3